Rare Disease Month: Patient Stories

Kristi Harmon and Virginia Maxwell are both rare disease patients and caregivers from South Carolina. Kristi’s family suffers from Cyclic Vomiting Syndrome, while Virginia’s suffers from a skin disorder called Pityriasis Rubra Pilaris. Both lead advocacy groups to support other families with their disease, raise awareness of unmet needs in the rare disease community, and lobby legislators to support policies that can make healthcare more effective and accessible for all.